I was born a rule follower. Ask anyone who grew up with me. I didn’t break the rules. I didn’t cuss, didn’t drink, blah, blah, blah. I was the good girl. Not perfect, just the typical societal sheep that didn’t question authority.
Fast forward to my baby girl getting sick and the tide has turned. There is not one rock that will not be overturned in the hunt for her healing. I would walk every inch of this earth to find something to help her.
Two weeks ago, with my husband on FaceTime I gave our 6 year old daughter her first dose of cannabis oil. He was on the phone because our family is a medical refugee family. He still lives in our home state of Texas working to support this “radical” chance of healing our daughter.
Why is medical cannabis considered radical? Because we have all been brainwashed into thinking Marijuana is a degradation to our society. In truth, it is a medicine that is saving people’s lives.
I was invited last weekend to attend the premiere of Culture High. It should be required viewing for anyone in favor of the prohibition of Marijuana. As I sat and watched Jason David give his testimony of using cannabis oil with his son, who also has Dravet syndrome I got really angry. Well, first I bawled my eyes out and then I got mad.
We, the parents of Dravet children, go through horrendous times and no one should ever have to watch the horror of seeing their child suffer through a seizure much less hundreds of them without access to medicine proven to help.
And so we split our family to try the oil that has been a God send for so many children with this disorder.
And as the holidays approach and I try to plan Thanksgiving, I have come to the reality that I can’t make any plans. I cannot fly home to be with my parents, sister’s family and friends because I would be considered a criminal. How can that be? I have worked my whole life to be a good citizen and follow all the laws of the land and when our family needs something back from our state, the door has been shut. We are not welcome anymore.
We received a phone call from a friend last week telling us not to even consider coming home because authorities are waiting for a family like ours to make an example of. How could anyone even consider arresting us or taking our children from us? We have done everything in our power to heal our child.
Our daughter has seizures and no mainstream medical doctor has offered any solutions except hard core pharmaceuticals which would forever alter her brain. We finally have a chance to try medicine that may help our daughter not have any more seizures and what do we get in return? My 6 year old and 8 year old and I may not travel back home for the holidays or live, for that matter in our own home.
I am not a criminal and nor are my little girls. We just want the chance to live a normal life without the fear of seizures looming over us.
P.S. Day 14, seizure free tomorrow.