The Diet

Kennedy continued to seize every 7-10 days and we continued to work with Dr. Elsner and an Osteopath he had been working in conjunction with. We did $3,000.00 worth of testing with the Osteopath. We tested her allergies to food, allergens, environment…you name it. We tested her stool, urine, blood…everything. She did cranial manipulation on Kennedy. We tried a concoction [...]

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Following God’s Lead – Alternative Therapy

We fasted for three weeks and dedicated it to finding answers for Kennedy. It was one of the most profound experiences of my life. We weren’t currently seeing any doctors for Kennedy and we didn’t have any inkling of where this was going to lead us, but God led us straight back to one of the doctors we had seen [...]

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The Diagnosis – Dravet

May 19th, 2010 I receive the news on accident from my pediatrician that Kennedy has tested positive for the SCN1A mutation which means she has Dravet syndrome. We met with the neurologist the next day and went over all of our options for medication and he recommended we go to Chicago to meet with the leading neurologist in the nation [...]

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